NEW LINKS ARE ADDED OFTEN!
Spina Bifida Association
http://www.sbaa.org/
Kosair Charities
www.kosair.org
Community Health Charities-Kentucky Chapter
http://kentucky.healthcharities.org/
Hospitals/Health Departments:
Kosair Children's Hospital
http://www.nortonhealthcare.com/locations/hospitals/kosair/index.aspx
Monroe Carell Jr. Children's Hospital at Vanderbilt
http://www.vanderbiltchildrens.com/
Riley Hospital for Children in Indianapolis
http://rileychildrenshospital.com/
Cincinnati Chidren's Hospital
http://www.cincinnatichildrens.org/
Kentucky Health Department Listings (updated January 2010)
http://chfs.ky.gov/NR/rdonlyres/F37BDF08-7C60-4E61-B001-29B8D2A68FE6/0/AlphaLHDListing61809.pdf
Frazier Rehab Institute
http://www.jhsmh.org/carecenters/re_sp_adaptsports.asp
Research:
MOM's Trial
http://www.spinabifidamoms.com/english/index.html
Support Services:
First Steps
http://fs.chfs.ky.gov
Center for Accessible Living
www.calky.org
(502) 589-6620
981 S. Third St, Louisville, KY 40203
Centers for Disease Control/Birth Defect Prevention
www.cdc.gov
Transit Authority of River City (Cust Service)
(502) 585-1234 TTY (502) 587-8255
Transit Authority of River City
www.ridetarc.org
Superior Van and Mobility
(502) 447-8267
www.superiorvan.com
National Information Center for Children and Youth with Disabilities
www.nichcy.org
Family Information Network on Disabilities (FIND)
www.councilonmr.org
Conquer Chiari
www.conquerchiari.org
Active Day Medical Adult Day Care
http://www.activeday.com/KY.htm
The Spinal Cord Injury Association of Kentucky
www.sciak.org
Derby City Area Spinal Cord Injury Association
www.derbycityspinalcord.org
The National Kidney Foundation of Kentucky
www.nkfk.org
United Healthcare Childrens Foundation
http://www.uhccf.org/apply_applicant.html
AMRAMP
www.amramp.com
Movin' On Mobility
http://www.movinonmobility.com
Kids Center
www.kidscenterky.com
Baby Center
http://www.babycenter.com/
Government:
American Disabilities Act (ADA)
www.usdoj.gov/crt/ada
American Association of People with Disabilities Newsletter
http://visitor.constantcontact.com/email.jsp?m=1101795480929
Commonwealth of Kentucky, Cabinet for Families & Children
http://cfc.state.ky.us
Disability-Connecting the Disability Community to Information & Opportunities
http://www.disability.gov/
Social Security Online-The Red Book
http://www.socialsecurity.gov/redbook/2010/introduction.htm
Educational Resources:
Going to College-Resource for teens with disabilities
http://www.going-to-college.org/
United Healthcare Grant Application
http://www.uhccf.com/index.html
EnTech Enabling Technologies
http://www.spalding.edu/content.aspx?id=2166&cid=242
Career Information:
Independent Industries
http://www.independentindustries.com/
Activites:
OWL
mbazeley@bellsouth.net
Adaptive Sports Center
http://www.adaptivesports.org/
National Ability Center:
www.discovernac.org
Central Kentucky Riding for Hope
www.ckrh.org
The Luci Center
www.thelucicenter.org
BlazeSports
www.blazesports.org
Louisville Fencing
http://www.louisvillefencing.org/index.cfm?fuseaction=wheelchair.main
Locker Soccer Academy
www.lockersoccer.com
Bluegrass Miracle League
www.bluegrassmiracleleague.org
Health Services:
Center for Orthopedic & Prosthetic Care
http://www.centeropcare.com/
(502) 637-7717
Commission for Children with Special Health Care Needs
(502) 595-4459
http://chfs.ky.gov/ccshcn/
Neurosurgery for Kids
www.neurosurgery4kids.com
Institute for Neurology and Neurosurgery
www.nyneurosurgery.org
Council on Mental Retardation--Parent Outreach
www.councilonmr.org/parent.htm
March of Dimes
http://www.marchofdimes.com/
Latex Allergy Links
http://www.latexallergylinks.org/
American Latex Allergy Association/ALERT
www.latexallergyresources.org
Decent Exposures (Latex Free Undergarments)
http://www.decentexposures.com/
Latex List from SBA website-Updated Spring 2009
http://www.spinabifidaassociation.org/atf/cf/{EED435C8-F1A0-4A16-B4D8-A713BBCD9CE4}/LatexList09.pdf
American Academy of Allergy, Asthma & Immunology
www.aaaai.org
UroMed
www.uromed.com
Advocate Medical Services
www.advocatemed.com/
Every Kid Mobility
http://everykidmobility.com/
New Mobility Magazine
https://www.newmobility.com/bookstore-KOW.cfm?type=REG&order_id=new
The Littlest Hero
http://www.littlestheroesproject.org/Littlest_Heroes_Project/Home.html
American Association of People with Disabilities
http://aapd.com/
Family Support Center on Disabilites: Knowledge & Involvement Network (KIN)
http://www.familysupportclearinghouse.org
Family Support Center Brochure
http://www.familysupportclearinghouse.org/Pages/brochure.aspx
ABILITY House
http://www.abilityawareness.org/
Aubrey Rose Foundation
www.aubreyrose.org/
Food and Drug Administration
http://www.fda.gov/
Shunt Recall Notice
http://www.fda.gov/cdrh/recalls/recall-100308.html
ThisAbled
www.thisabled.com
Family Voices
www.familyvoices.org
Health Finder
www.healthfinder.gov
The Boulevard
www.blvd.com
Disability Central
www.disabilitycentral.com
PN (Paraplegia News)
www.pvamagazines.com
Spina Bifida Parents Online Support Forum
www.spinabifidaparents.com
Family Village
www.familyvillage.wisc.edu
Abilities Expo
www.abilitiesexpo.com
Chloe Magazine
www.chloemagazine.com
Emerging Horizons Accessible Travel News
www.emerginghorizons.com
International Federation of Spina Bifida and Hydrocephalus
http://ifglobal.sitehosting.be/home.asp?lang=1&main=1
Exceptional Children Parent Resource Library
http://www.education.ky.gov/KDE/Instructional Resources/Exceptional Children/Parent Involvement/Parent Resource Library.htm